http://www.fibroregistry.org/contact-us
http://www.fibroregistry.org/about
http://www.fibroregistry.org/registry-sign-up

01 Who?

We are a group of fibrolamellar patients and parents working together to find a cure. More

02 What?

We aim to use our collective power as patients to further scientific research. More

03 Why?

Next generation research depends on having access to tissue samples and the stories behind them. More