http://www.fibroregistry.org/survey
http://www.fibroregistry.org/faq-fibrolamellar
http://www.fibroregistry.org/survey
http://www.fibroregistry.org/fibrolamellar-tissue-bank
http://www.fibroregistry.org/donate

Fibrolamellar News

Stay up-to-date about fibrolamellar by checking out the most current articles, in the general press and in the scientific literature, curated by a group of fibrolamellar patients and parents working together to find a cure. More

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100% Participation

Now that we have officially launched the Registry, our goal is to have every single patient in the fibrolamellar community participate. That's because the more people who join, and the more information they share, the more useful the Registry will be to the doctors and scientists studying this disease. More