This past week the US House and Senate passed the 21st Century Cures Act. This provides $5 billion for the NIH for The Precision Medicine Initiative, Brain Initiative and the Moonshot on Cancer - a legislation established earlier this year aiming to make therapies more available and improving early stage prevention. Its emphasis was given to pediatric, adolescent and young adult cancers, including fibrolamellar.
On Tuesday, Elana Simon, a fibrolamellar patient/researcher and member of the Fibrolamellar Registry board, went to the White House to stand on stage as President Obama signed the 21 Century Cures Act. We are grateful for this important step forward towards hope and action!